And it continues

And it continues. Sonora had a great night last night and was fine this morning. She had one partial seizure at school that lasted only 30 seconds but of course that is enough to cause her to be tired. After drama and a nap she was feeling better until she came home. Poor Sonora was sick to her stomach and threw up. So now I have to decide is she sick from all the activity in her head, or that she hasn't eaten much today, or is it from bumping up the medicine so fast, or even is it a little stomach bug? Of course I decide to call the Dr, whom I think is probably thinking I over react, who doesn't think it was the medicine but to go ahead and cut back. So she is still having seizures on what she was on and maybe we need to start over, yet again.... I am so frustrated, and wish we could just go back to where we were.


So, this seems to happen to me often; I get complacent when there are not a lot of appointments on the calendar. As a result, I tend to forget to check to make sure everything is all set. I cancelled tomorrow's appointment for Sonora because she wasn't doing well. I cancelled the dentist the other day to go pick her up from school instead. I just realized that her spina bifida apt is during Spring Break which is great if we were going to be here! UGHH!! Working on getting referrals for her appointments and am just frustrated that I even have to bother. Really, Sonora is always going to need a certain set of Doctors and wouldn't it just be easier if we could make an appointment anytime with any of those specialists with out first getting permission from her PCM?

Oh, just another typical day. Oh and to top matters off my refill that was supposed to be ready on Monday wasn't ready and actually didn't seem to be processed at all. Really, can one thing go right this month???!!!